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X-ORIGINAL-URL:https://ukrainianinstitute.org
X-WR-CALDESC:Events for 
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210410T120000
DTEND;TZID=America/New_York:20210410T120000
DTSTAMP:20260506T194551
CREATED:20210406T222651Z
LAST-MODIFIED:20210407T203133Z
UID:5280-1618056000-1618056000@ukrainianinstitute.org
SUMMARY:Charitable Marathon “Save Children with SMA”
DESCRIPTION: \nCurrently over 200 children with Spinal Muscular Atrophy (SMA) live in Ukraine. About 30 of them have an early onset type I SMA that leads to death by 2 years of age. The new revolutionary treatment\, which it’s extremely expensive\, is not provided by Ukrainian government. \nFacebook Event: https://fb.me/e/hLxBXJShp \nSMA families will join the marathon through the video. We call on Ukrainians abroad to join our call to action: become a SMA angel for SMA child! Let’s give these children a chance for a normal life!\nEvent will be streamed through Zoom\, Facebook (Razom)\, and Youtube (Врятувати Діму).\nJoin zoom meeting here: https://bit.ly/3cMpFcf \nMeeting ID: 923 7477 4490\nPasscode: 471955 \nAll proceeds from donations will go for the gene therapy treatment of little Dmytro\, the son of a patriot\, Euromaidan activist and the head of Odesa Samooborona Vitaliy Svichynskiy.\nDonations can be made through the Paypal (tax-deductible) – mark “For Dmytro”:\nhttps://bit.ly/39Rp0o1 \nGofundme:\nhttps://www.gofundme.com/f/save-dmytro-fighting-spinal-muscular-atrophy \nCharitable Marathon “Save Children with SMA”
URL:https://ukrainianinstitute.org/event/charitable-marathon/
CATEGORIES:Other Ukrainian-American Community Events
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