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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211017T140000
DTEND;TZID=America/New_York:20211017T140000
DTSTAMP:20260506T171205
CREATED:20210707T104942Z
LAST-MODIFIED:20211016T221811Z
UID:5626-1634479200-1634479200@ukrainianinstitute.org
SUMMARY:What is SMA: Story of Svichynskyi Family
DESCRIPTION:The Ukrainian Institute of America\, Razom for Ukraine\, Ukrainian American Business and Professionals Association\, and Big Dreams Children’s Foundation with the support of the Honorary Consulate to the state of Pennsylvania present What is SMA: Story of Svichynskyi Family. \nMeet Dmytryk Svichynskyi and his parents\, who raised $2.05 million in 80 days for the most expensive treatment in the world – gene therapy Zolgensma. Dmytro was diagnosed with spinal muscular atrophy (SMA) type I\, and treated with Zolgensma on July 15\, 2021 at the Children’s Hospital of San Antonio\, Texas. We invite all donors\, volunteers\, supporters and anybody interested in SMA topic to come meet Dmytro in person and hear the story of his successful treatment in the US. We will also discuss how Dmytryk’s fundraiser turned into a nationwide advocacy campaign “Dity\, My Vstyhnemo” (Children\, We Will Make it in Time). \nJoin us for a good conversation\, short film and h’orders by Veselka. \nRSVP HERE \nIn compliance with the most current New York State and New York City COVID public health and safety guidelines\, proof of vaccination and masks are required for attendance.  \nWhat is SMA: Story of Svichynskyi Family
URL:https://ukrainianinstitute.org/event/what-is-sma-story-of-svichynskyi-family/
CATEGORIES:Other
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