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Charitable Marathon “Save Children with SMA”

April 10 @ 12:00 pm

Currently over 200 children with Spinal Muscular Atrophy (SMA) live in Ukraine. About 30 of them have an early onset type I SMA that leads to death by 2 years of age. The new revolutionary treatment, which it’s extremely expensive, is not provided by Ukrainian government.

Facebook Event: https://fb.me/e/hLxBXJShp

SMA families will join the marathon through the video. We call on Ukrainians abroad to join our call to action: become a SMA angel for SMA child! Let’s give these children a chance for a normal life!
Event will be streamed through Zoom, Facebook (Razom), and Youtube (Врятувати Діму).
Join zoom meeting here: https://bit.ly/3cMpFcf

Meeting ID: 923 7477 4490
Passcode: 471955

All proceeds from donations will go for the gene therapy treatment of little Dmytro, the son of a patriot, Euromaidan activist and the head of Odesa Samooborona Vitaliy Svichynskiy.
Donations can be made through the Paypal (tax-deductible) – mark “For Dmytro”:
https://bit.ly/39Rp0o1

Gofundme:
https://www.gofundme.com/f/save-dmytro-fighting-spinal-muscular-atrophy

Charitable Marathon “Save Children with SMA”

Details

Date:
April 10
Time:
12:00 pm
Event Category: