- This event has passed.
Charitable Marathon “Save Children with SMA”
April 10, 2021 @ 12:00 pm
Currently over 200 children with Spinal Muscular Atrophy (SMA) live in Ukraine. About 30 of them have an early onset type I SMA that leads to death by 2 years of age. The new revolutionary treatment, which it’s extremely expensive, is not provided by Ukrainian government.
Facebook Event: https://fb.me/e/hLxBXJShp
SMA families will join the marathon through the video. We call on Ukrainians abroad to join our call to action: become a SMA angel for SMA child! Let’s give these children a chance for a normal life!
Event will be streamed through Zoom, Facebook (Razom), and Youtube (Врятувати Діму).
Join zoom meeting here: https://bit.ly/3cMpFcf
Meeting ID: 923 7477 4490
Passcode: 471955
All proceeds from donations will go for the gene therapy treatment of little Dmytro, the son of a patriot, Euromaidan activist and the head of Odesa Samooborona Vitaliy Svichynskiy.
Donations can be made through the Paypal (tax-deductible) – mark “For Dmytro”:
https://bit.ly/39Rp0o1
Gofundme:
https://www.gofundme.com/f/save-dmytro-fighting-spinal-muscular-atrophy